{"id":18,"date":"2020-01-31T18:44:35","date_gmt":"2020-01-31T18:44:35","guid":{"rendered":"https:\/\/endpae.ie\/?page_id=18"},"modified":"2021-09-06T11:37:39","modified_gmt":"2021-09-06T11:37:39","slug":"about-ndpae","status":"publish","type":"page","link":"https:\/\/endpae.ie\/about-ndpae\/","title":{"rendered":"About NDpae"},"content":{"rendered":"\t\t
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About NDpae<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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What is NDpae?<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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NDpae is a life-long disorder caused by alcohol interfering with the development of the foetal brain; this is also known as Foetal Alcohol Spectrum Disorder (FASD).<\/strong><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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NDpae Defined\u200b<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Neurodevelopmental Disorder is a broad term that describes a number of brain-based conditions arising from a range of diverse causes. If the injury to the foetus is from alcohol, it is referred to as NDpae, which stands for prenatal alcohol exposure. We are using the term NDpae because we feel it is more broadly inclusive of the kinds of effects that alcohol can have on the developing foetus. The other term commonly used to describe these conditions, Foetal Alcohol Spectrum Disorder (FASD) carries too many unhelpful connotations, stigmatizing birth parents and children. We use the term \u201cND\u201d because it allows individuals to choose whether or not to share how their brain-based condition was acquired.<\/strong><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Prenatal alcohol exposure (pae) can cause a wide range of medical conditions in children. These do not diminish with time, they are life-long.<\/strong><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Put simply, alcohol interferes with the global development of the foetus especially the nervous system. Consequently, functions controlled by specialized regions of the brain can be at risk.<\/strong><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t

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NDpae in a Nutshell\u200b<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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  • NDpae is also known as Foetal Alcohol Spectrum Disorder (FASD)<\/li>
  • NDpae is a neurodevelopmental disorder with effects caused by alcohol<\/li>
  • NDpae is a spectrum of life-long brain-related and general health effects caused by the consumption of alcohol during pregnancy<\/li>
  • It is one of the leading causes of mental health conditions<\/li>
  • Most people with NDpae score higher on IQ tests than they can function in the real world – their Adaptive Functioning is compromised<\/li>
  • NDpae causes serious social and behavioural differences<\/li>
  • Each year, in Ireland, at least 620 babies are born with NDpae<\/li>
  • During Pregnancy, less alcohol is better, NONE IS BEST; there is no known safe limit. <\/li>
  • Alcohol damages more babies than any other drug<\/li>
  • Diagnostic terms which sit under the same umbrella as NDpae include:
    • Foetal Alcohol Syndrome (FAS) <\/li>
    • Partial Foetal Alcohol Syndrome (PFAS)<\/li>
    • Alcohol Related Neurodevelopmental Disorder (ARND)<\/li>
    • Neurobehavioral Disorder Associated with Prenatal Alcohol Exposure (ND-PAE)<\/li>
    • Alcohol-Related Birth Defects (ARBD)<\/li><\/ul><\/li>
    • Many children with NDpae also have diagnoses for other conditions such as Attention Deficit Hyperactivity Disorder (ADHD), Oppositional Defiant Disorder (ODD), and Autism Spectrum Disorder (ASD).<\/li><\/ul>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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      Living with NDpae<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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      NDpae Effects<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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      Longstanding research shows that people with this condition are likely to face serious difficulties in their journey through life if they have not had the correct support services:<\/strong><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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      \"\"<\/figure>
      Typical Thought Process<\/div>

      \u2022 Orderly, organised and sequential\n\n\u2022 Many opportunities for links and interconnections\n<\/p><\/div><\/div>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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      \"\"<\/figure>
      NDpae Thought Process<\/div>

      \u2022 Inconsistent growth, disorganised, gaps and clusters<\/br>\n\n\u2022 Clusters can appear as areas of strength. Eg. in art, music, etc. These may contribute to overall spiky developmental profiles<\/p><\/div><\/div>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t

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      Uneven Developmental Profiles<\/h3>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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      These diagrams illustrates how people with NDpae present with uneven development.<\/strong> Every person will be different but this is a typical profile.<\/i><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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      Things Young People with NDpae Say...\n<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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      • \u201cI learn best when you show me how rather than tell me.\u201d<\/li>
      • \u201cIt\u2019s like my brain wants me to see everything in the room and hear every sound, all at once.\u201d<\/li>
      • \u201cI probably won\u2019t hear what the teacher is saying because I\u2019m hearing someone tap their pencil or people in the corridor or a dog outside or even the heater.\u201d<\/li>
      • \u201cI can understand something one day and not, the next.\u00a0 <\/span>It can come back another day. It\u2019s crazy for everyone, especially me and very frustrating.\u201d<\/li>
      • \u201cMy brain is wired differently so things can just slip in and out of it easily.\u201d\u00a0<\/span><\/li>
      • \u201cI have no answers why I do what I do and I can get very impatient but if you ask me something, I\u2019ll make my best guess.\u201d<\/li>
      • \u201cIf my schedule gets mixed up, I just shut down. My brain freezes.\u201d<\/li><\/ul>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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        Things Their Parents Say...<\/h3>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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        • One of our first clues that there was something unusual going on was when we realized she simply didn\u2019t learn from experience, that \u201cconsequences\u201d didn\u2019t work.<\/span><\/li>\n \t
        • The explosive tantrums – some people call them Blow-ups or Melt-downs – are really hard to take. I find it difficult to stay thinking and not reacting, remembering that this is a damaged brain reacting to something it can\u2019t deal with.<\/span><\/li>\n \t
        • \u201cListening to music really helps him. These days, after listening to his music, he can talk about what is wrong or what happened.\u201d<\/li>\n \t
        • \u201cShe has great long term memory but often can\u2019t remember recent things. It makes it hard to help with homework or new things she\u2019s learned at home.\u201d<\/li>\n \t
        • \u201cI worry about him being alone – people often don\u2019t want to play with him.\u201d<\/li>\n \t
        • \u201cShe loves being creative but it sometimes drives me crazy when she makes such a mess.\u201d<\/li>\n \t
        • \u201cUntil we learned we weren\u2019t the only family dealing with this, we were in a very lonely place. Often we felt hopeless.\u201d<\/li>\n \t
        • \u201cSome of the stories she can tell are brilliant. I\u2019d nearly believe them.\u201d<\/li>\n \t
        • \u201cI\u2019ve recently heard that research is showing brain resiliency means some recovery is possible.\u201d<\/li>\n \t
        • \u201cWe see the round the clock picture. Everyone outside the home sees the best-out takes and can\u2019t understand the challenges to a \u201cnormal\u201d life.\u201d<\/li>\n \t
        • My most useful mantra is \u201cCan\u2019t, not Won\u2019t.\u201d<\/span><\/li>\n<\/ul>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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          Things Parents Say...<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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